Sickle-Cell disease is a severe and potentially life-threating chronic disease which needs early detection and optimized clinical therapy. Worldwide there are several institutions and foundations, which are present in internet and social media. However, the therapeutic options in Europe depend form the specific health system and show substantial differences between the countries where people are living or immigrating from regions with high rates of genetic predisposition.
Our goal is to give an overview about existing sources where patients and their families can find further informations about the disease. Furthermore, we want to support the building of communicative networks between doctors who are treating these group of patients, and to provide a platform in the form of an internet based discussion forum.